Transition to Adult Rheumatology Care

As children with juvenile rheumatologic conditions grow into young adults, there comes a significant milestone – transitioning from pediatric to adult rheumatology care. This change can be both exciting and challenging, so here are some tips on how to prepare your child for this transition:
1. Start Early: Begin discussing the transition well in advance. Give your child time to understand the process and ask questions.
2. Empower Independence: Encourage your child to take a more active role in their healthcare. Teach them about their medications, self-care routines, and the importance of adherence.
3. Communication: Foster open and honest communication. Let your child know that their thoughts, concerns, and questions are important. Discuss the upcoming changes together.
4. Medical Records: Ensure your child has a comprehensive medical history. This should include treatment records, test results, and any important information about their condition.
5. Research and Education: Encourage your child to learn about their condition and its management. Knowledge empowers them to advocate for themselves.
6. Support Network: Help your child build a support network. Friends, family, and patient support groups can be incredibly valuable during this transition.
7. Mental Health: Address the emotional aspect. Chronic conditions can be emotionally challenging. Make sure your child knows it’s okay to seek help for their mental well-being.
8. Lifestyle Changes: Understand that as your child grows, their lifestyle may change. Be open to adjusting their treatment plan accordingly.
9. Continuity of Care: Discuss with your current pediatric rheumatologist and the new adult rheumatologist how they will work together to ensure a seamless transition.
10. Advocacy Skills: Teach your child how to advocate for themselves. This includes speaking up about their needs and understanding their rights as a patient.

Transitioning to adult care is a significant step, but with your guidance and support, your child can successfully navigate it. Their resilience and strength are truly inspiring, and they’re not alone in this journey.

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